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Author: Paweł Butwiłowski | Publish date: 02 July 2020

Support of little Hani from Elk

02 July 2020, Author: Paweł Butwiłowski

The collection action is in progress money for little Hani from Elk, who suffers from the most severe form of SMA type 1 – spinal muscular atrophy. From recent gene therapy can take place in Poland.

Hania from Elk was born in October 2019 Year. Little Hani was diagnosed with the most severe form of Type 1 SMA – spinal atrophy Muscle. The method of treatment for children with SMA 1 consists of a therapy in which an artificial gene is given to increase the amount of protein produced necessary for proper muscle operation. Recently, gene therapy can take place in Poland. Therapy can be carried out only up to 2 years of age.

You can help the fundraiser to save the girl's life through the www.siepomaga.pl/hania There are also organized gatherings in the city.

So far, collected about 100 000 6 million PLN
It's still missing approximately 3.4 million.

SMA is a spinal muscular atrophy that is a very rare disease of the nervous and muscular system. SMA is a deadly and very brutal disease. The child's muscles weaken and disappear until they eventually disappear those responsible for breathing. If treatment is not immediately introduced, children stop in physical development, do not acquire skills sit on their own, gradually lose the ability to breathe and swallow, exposure to severe infections. They require round-the-clock care.

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