Support of little Hani from Elk
02 July 2020, Author: Paweł Butwiłowski
The collection action is in progress
money for little Hani from Elk, who suffers from the most severe form of SMA type 1 –
spinal muscular atrophy. From
recent gene therapy can take place in Poland.
Hania from Elk was born in October 2019
Year. Little Hani was diagnosed with the most severe form of Type 1 SMA – spinal atrophy
Muscle. The method of treatment for children with SMA 1 consists of a therapy in which
an artificial gene is given to increase the amount of protein produced
necessary for proper muscle operation. Recently, gene therapy can take place in Poland. Therapy can be
carried out only up to 2 years of age.
You can help the fundraiser to save the girl's life through the www.siepomaga.pl/hania
There are also organized gatherings in the city.
So far,
collected about 100 000 6 million PLN
It's still missing
approximately 3.4 million.
SMA is a spinal muscular atrophy that is
a very rare disease of the nervous and muscular system. SMA is a deadly and
very brutal disease. The child's muscles weaken and disappear until they eventually disappear
those responsible for breathing. If treatment is not immediately introduced,
children stop in physical development, do not acquire skills
sit on their own, gradually lose the ability to breathe and swallow,
exposure to severe infections. They require round-the-clock care.
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